NATIONAL ORGANIZATION FOR RARE
QID Q16930739 · EIN 133223946
| Fact | Value | Period | Source |
|---|---|---|---|
| contributions_and_grants | {"amount": 23944805, "currency": "USD"} | 2025-12-31 | irs_990 |
| contributions_and_grants | {"amount": 40390497, "currency": "USD"} | 2024-12-31 | irs_990 |
| contributions_and_grants | {"amount": 55591572, "currency": "USD"} | 2023-12-31 | irs_990 |
| contributions_and_grants | {"amount": 51401122, "currency": "USD"} | 2022-12-31 | irs_990 |
| contributions_and_grants | {"amount": 36679921, "currency": "USD"} | 2021-12-31 | irs_990 |
| contributions_and_grants | {"amount": 36711628, "currency": "USD"} | 2020-12-31 | irs_990 |
| contributions_and_grants | {"amount": 43644020, "currency": "USD"} | 2019-12-31 | irs_990 |
| contributions_and_grants | {"amount": 42070943, "currency": "USD"} | 2018-12-31 | irs_990 |
| employee_count | {"value": 116} | 2025-12-31 | irs_990 |
| employee_count | {"value": 124} | 2024-12-31 | irs_990 |
| employee_count | {"value": 118} | 2023-12-31 | irs_990 |
| employee_count | {"value": 123} | 2022-12-31 | irs_990 |
| employee_count | {"value": 111} | 2021-12-31 | irs_990 |
| employee_count | {"value": 99} | 2020-12-31 | irs_990 |
| employee_count | {"value": 91} | 2019-12-31 | irs_990 |
| employee_count | {"value": 84} | 2018-12-31 | irs_990 |
| exempt_since | {"date": "1989-05-01", "precision": "month"} | 1989-05-01 | irs_eo_bmf |
| legal_address | {"city": "DANBURY", "region": "CT", "street": "7 KENOSIA AVENUE", "country": "US", "format | irs_eo_bmf | |
| legal_name | {"value": "NATIONAL ORGANIZATION FOR RARE DISORDERS INC"} | irs_eo_bmf | |
| legal_name | {"value": "National Organization for Rare Disorders, Inc."} | fac_single_audit | |
| legal_name | {"value": "NATIONAL ORGANIZATION FOR RARE"} | irs_990 | |
| net_assets | {"amount": 63632089, "currency": "USD"} | 2025-12-31 | irs_990 |
| net_assets | {"amount": 68575937, "currency": "USD"} | 2024-12-31 | irs_990 |
| net_assets | {"amount": 60621443, "currency": "USD"} | 2023-12-31 | irs_990 |
| net_assets | {"amount": 46304541, "currency": "USD"} | 2022-12-31 | irs_990 |
| net_assets | {"amount": 34941697, "currency": "USD"} | 2021-12-31 | irs_990 |
| net_assets | {"amount": 49567652, "currency": "USD"} | 2020-12-31 | irs_990 |
| net_assets | {"amount": 59419323, "currency": "USD"} | 2019-12-31 | irs_990 |
| net_assets | {"amount": 48710640, "currency": "USD"} | 2018-12-31 | irs_990 |
| officer_compensation_total | {"amount": 1110324.0, "currency": "USD"} | 2025-12-31 | irs_990 |
| officer_compensation_total | {"amount": 1173848.0, "currency": "USD"} | 2024-12-31 | irs_990 |
| officer_compensation_total | {"amount": 1161618.0, "currency": "USD"} | 2023-12-31 | irs_990 |
| officer_compensation_total | {"amount": 1160969.0, "currency": "USD"} | 2022-12-31 | irs_990 |
| officer_compensation_total | {"amount": 1025976.0, "currency": "USD"} | 2021-12-31 | irs_990 |
| officer_compensation_total | {"amount": 1047383.0, "currency": "USD"} | 2020-12-31 | irs_990 |
| officer_compensation_total | {"amount": 947732.0, "currency": "USD"} | 2019-12-31 | irs_990 |
| officer_compensation_total | {"amount": 904669.0, "currency": "USD"} | 2018-12-31 | irs_990 |
| program_service_revenue | {"amount": 7935317, "currency": "USD"} | 2025-12-31 | irs_990 |
| program_service_revenue | {"amount": 7674762, "currency": "USD"} | 2024-12-31 | irs_990 |
| program_service_revenue | {"amount": 8312225, "currency": "USD"} | 2023-12-31 | irs_990 |
| program_service_revenue | {"amount": 8070658, "currency": "USD"} | 2022-12-31 | irs_990 |
| program_service_revenue | {"amount": 6266078, "currency": "USD"} | 2021-12-31 | irs_990 |
| program_service_revenue | {"amount": 5782111, "currency": "USD"} | 2020-12-31 | irs_990 |
| program_service_revenue | {"amount": 8392510, "currency": "USD"} | 2019-12-31 | irs_990 |
| program_service_revenue | {"amount": 5024265, "currency": "USD"} | 2018-12-31 | irs_990 |
| revenue | {"amount": 34577196, "currency": "USD"} | 2025-12-31 | irs_990 |
| revenue | {"amount": 50676798, "currency": "USD"} | 2024-12-31 | irs_990 |
| revenue | {"amount": 66397453, "currency": "USD"} | 2023-12-31 | irs_990 |
| revenue | {"amount": 59872383, "currency": "USD"} | 2022-12-31 | irs_990 |
| revenue | {"amount": 43188172, "currency": "USD"} | 2021-12-31 | irs_990 |
| revenue | {"amount": 42843360, "currency": "USD"} | 2020-12-31 | irs_990 |
| revenue | {"amount": 52413377, "currency": "USD"} | 2019-12-31 | irs_990 |
| revenue | {"amount": 47123099, "currency": "USD"} | 2018-12-31 | irs_990 |
| tax_exempt_status | {"value": "990", "scheme": "IRS Form"} | 2025-12-31 | irs_990 |
| tax_exempt_status | {"value": "990", "scheme": "IRS Form"} | 2024-12-31 | irs_990 |
| tax_exempt_status | {"value": "990", "scheme": "IRS Form"} | 2023-12-31 | irs_990 |
| tax_exempt_status | {"value": "990", "scheme": "IRS Form"} | 2022-12-31 | irs_990 |
| tax_exempt_status | {"value": "990", "scheme": "IRS Form"} | 2021-12-31 | irs_990 |
| tax_exempt_status | {"value": "990", "scheme": "IRS Form"} | 2020-12-31 | irs_990 |
| tax_exempt_status | {"value": "990", "scheme": "IRS Form"} | 2019-12-31 | irs_990 |
| tax_exempt_status | {"value": "990", "scheme": "IRS Form"} | 2018-12-31 | irs_990 |
| tax_exempt_status | {"value": "501(c)(3)", "status_code": "01"} | irs_eo_bmf | |
| total_assets | {"amount": 66900297, "currency": "USD"} | 2025-12-31 | irs_990 |
| total_assets | {"amount": 72321740, "currency": "USD"} | 2024-12-31 | irs_990 |
| total_assets | {"amount": 65154464, "currency": "USD"} | 2023-12-31 | irs_990 |
| total_assets | {"amount": 49542120, "currency": "USD"} | 2022-12-31 | irs_990 |
| total_assets | {"amount": 37875246, "currency": "USD"} | 2021-12-31 | irs_990 |
| total_assets | {"amount": 52774540, "currency": "USD"} | 2020-12-31 | irs_990 |
| total_assets | {"amount": 61751096, "currency": "USD"} | 2019-12-31 | irs_990 |
| total_assets | {"amount": 50838028, "currency": "USD"} | 2018-12-31 | irs_990 |
| total_expenses | {"amount": 40401111, "currency": "USD"} | 2025-12-31 | irs_990 |
| total_expenses | {"amount": 43034462, "currency": "USD"} | 2024-12-31 | irs_990 |
| total_expenses | {"amount": 52832739, "currency": "USD"} | 2023-12-31 | irs_990 |
| total_expenses | {"amount": 48420739, "currency": "USD"} | 2022-12-31 | irs_990 |
| total_expenses | {"amount": 57720517, "currency": "USD"} | 2021-12-31 | irs_990 |
| total_expenses | {"amount": 52712119, "currency": "USD"} | 2020-12-31 | irs_990 |
| total_expenses | {"amount": 41789694, "currency": "USD"} | 2019-12-31 | irs_990 |
| total_expenses | {"amount": 34074818, "currency": "USD"} | 2018-12-31 | irs_990 |
| total_liabilities | {"amount": 3268208, "currency": "USD"} | 2025-12-31 | irs_990 |
| total_liabilities | {"amount": 3745803, "currency": "USD"} | 2024-12-31 | irs_990 |
| total_liabilities | {"amount": 4533021, "currency": "USD"} | 2023-12-31 | irs_990 |
| total_liabilities | {"amount": 3237579, "currency": "USD"} | 2022-12-31 | irs_990 |
| total_liabilities | {"amount": 2933549, "currency": "USD"} | 2021-12-31 | irs_990 |
| total_liabilities | {"amount": 3206888, "currency": "USD"} | 2020-12-31 | irs_990 |
| total_liabilities | {"amount": 2331773, "currency": "USD"} | 2019-12-31 | irs_990 |
| total_liabilities | {"amount": 2127388, "currency": "USD"} | 2018-12-31 | irs_990 |
| volunteer_count | {"value": 1308} | 2025-12-31 | irs_990 |
| volunteer_count | {"value": 1181} | 2024-12-31 | irs_990 |
| volunteer_count | {"value": 1893} | 2023-12-31 | irs_990 |
| volunteer_count | {"value": 936} | 2022-12-31 | irs_990 |
| volunteer_count | {"value": 306} | 2021-12-31 | irs_990 |
| volunteer_count | {"value": 316} | 2020-12-31 | irs_990 |
| volunteer_count | {"value": 492} | 2019-12-31 | irs_990 |
| volunteer_count | {"value": 421} | 2018-12-31 | irs_990 |
| website | {"qid": "Q16930739", "url": "http://rarediseases.org/", "via": "wikidata"} | wikidata |
Cite as: FACTANKER, https://factanker.com/entity/306e5740-76a8-4c1a-8140-1dee78569f8a